Saturday, December 31, 2005

This n That, and oh, Happy New Year, Too

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The radiation treatments are really startin to kick my butt (fatigue), but I get a little break from them until Tuesday, so hopefully I will find enough energy to get through dinner invitations over the next couple of days. I managed to hold up quite well during Christmas, but I'm feelin a little tapped out right now.

My brother Fred leaves this morning to join his family at their condo in Florida (they flew down ahead of him on the 27th); he won't be home until Jan. 28 and I will miss him, although he promises to install internet and keep in touch via email. On Jan. 3rd, our 90 year old mother goes into respite for a couple of weeks at a really nice nursing home, since no one will be around to get her groceries and stuff. I'm worried about what might happen to her mental health, as the last three times she was hospitalized, she lost her mind, for a longer period each time. It took her 5 months to come out of her madness the last time, and seeing her behave in such bizarre ways was very upsetting. She is currently on medication to control paranoid delusions caused by dementia, but just revealed to my brother that she has begun having some episodes again. Doesn't bode well....

I'm not real big on New Year's, never have been, but it's as good a time as any to wish everyone good health, happiness and success in the coming months.

*clink*

Wednesday, December 28, 2005

Four Years Ago Today

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On December 28, 2001, Curtis and I exchanged wedding vows in the dining room of a house belonging to a nice lady whose number I found in the yellow pages. She was an elementary school teacher who was a justice of the peace on the side. Her son and elderly next-door neighbour served as our witnesses.

This was a spur-of-the-moment event, prompted by the gold wedding band that I had put in the toe of Curtis' Christmas stocking. It was placed there as a promise, the closest thing I could think of to an engagement ring. Curtis and I lived 1500 miles apart at the time, and the long-distance aspect of our relationship caused great strain, especially after I was diagnosed for the first time with cancer.

And so, 5 1/2 months after Curtis flew up to care for me after major surgery to remove my kidney, he returned again to spend Christmas with my family and me....and we ended up becoming husband and wife, just three days before I would have to put him on a plane that would carry him a continent away until we could navigate the complex and expensive immigration process and be together for good.

It was unorthodox, all right. Everything about how we met and how we married, was...especially for a cautious, conservative, by-the-book goodie two-shoes like me. But it just felt right.

And it was. And it is. It's the rightest thing I've ever done.

We're so happy. I treasure every day with my wonderful husband.

Happy anniversary, honey.

Saturday, December 24, 2005

Merry Christmas

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The best gift I ever got,
It didn't really weigh a lot;
It didn't have a ribbon round,
And it sometimes made a terrible sound.

The best gift it seems to me,
It wasn't 'neath the Christmas tree;
And yet, I guess I'd have to say,
That it made all the other presents twice as gay.

The best gift I'll ever get,
Was sometimes dry and sometimes wet;
Was usually pink, but oftentimes red,
As it lay so innocently in its bed.

The best gift I'll ever see,
The one I hold most dear to me,
The gift that nearly drove me wild,
Was a tiny newborn child.

Thursday, December 22, 2005

Curtis Strikes Again

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Those of you who have been reading me for a while may remember when Curtis sent Lester Polyester to the house for a Valentine's visit. Well, tonight after dinner, both Curtis and Lester's alter-ego, a "drunk" Santa, got me again.

I heard some loud banging on the back door, and then Curtis opening it up to a loud and slurred "HO HO HO, MERRRRRRRRRRRY CHRISTMAS!" In stumbled Santa with his glasses askew. He greeted me and promptly did a faceplant on our kitchen floor. After many raunchy jokes, he presented me with a scented fabric rose and then a teddy bear hot air balloon fastened to an adorable big plush Christmas moose. He put on quite a performance, and I know my face went twenty shades of red.

Ya think my husband loves me?

A Model of Charity

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I mentioned in my post yesterday how, over 25 years, many students in the various schools where I taught contributed generously to food and gift hampers for the needy in our city. Sometimes they were unknowingly giving to their own classmates. And most of the time they proudly presented their contribution(s) to me with gleaming eyes, eagerly waiting for thank you and praise....which of course I lavished upon them in spades. At times, they were perturbed that they would never know or meet the people who benefitted from their kindness; or witness the joy or gratitude of the recipients. I told them to be content with my shining face and words of thank you, for the greatest gifts are those given with a glad heart and for no reward other than the satisfaction of having served another. In the 12th century, Rabbi Moses (also known by the name Ben Miamon or Miamonides), a revered Hebrew philosopher and theologian, defined charity in terms of levels, the seventh level being the purest:

1. giving meagerly and reluctantly
2. giving happily but inadequately to the need
3. giving at a lower level than requested
4. giving voluntarily, noting the need without being asked by the needful or their agent
5. giving relative to the need without knowing the recipient, but the donor known by the recipient
6. giving generously but the needy not knowing the giver
7. giving happily, adequate to the need, in a matter to preclude future need, not knowing who the donor or recipient is

Wednesday, December 21, 2005

A Treasured Christmas Memory

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For the entire duration of my teaching career, I rallied my students every December to create hampers of food and gifts for needy families in the city. We would apply for families through the Christmas Cheer Board; then I would decorate the classroom to inspire the donations, and fill the chalkboards with a sign-up for particular items. I was relentless, insisting that even the poorest student could afford to give a box of jelly powder. Cash contributions would subsidize the hampers, purchase turkeys and buy toys. As the years went by, I added three or four needy senior citizens for whom to provide - and we all got a big kick out of adding to the modest food collection with a basket of special goodies: tea, candles, Christmas potholders, a festive lapel pin, biscuits, that sort of thing. There was an elderly lady, Sophie, and another particular family, whom we sponsored for many consecutive years, and with whom the students developed particularly close bonds.

All of this, to me, became what Christmas was truly about. I had Jewish, Muslim and Buddhist students who all contributed eagerly, understanding that it wasn't the Christian religion that I was promoting, but the multidenominational act of charity. In fact, I emphasized that the Jewish religion is the only one I know of that actually specifies seven levels of charity, the highest being that given anonymously and without recognition.

One year, when I was teaching junior high, homerooms were permitted to have classroom parties on the last day of school before Christmas holidays. My kids had outdone themselves in building hampers and I wanted to really reward them. Besides, there was an unfortunate rift in my family at the time that promised to make my Christmas a lonely and sad one, so I was determined to have a Christmas, no matter what. I collected $2.00 from each student who could afford it, to defray the cost of cold cuts, rye bread, cheese, pickles and potato chips. I brought soft drinks and twenty-five paper plates filled with my home baking. I shlepped a big boom box and invited the kids to bring their favourite music.

The kids ate until they almost exploded, then pushed all the desks to the walls and danced their lil feet off. Everyone else except the custodians had long left the building, but my kids and I were havin such a good time, we didn't want the party to end. Finally, the custodians, after havin a pretty good feed themselves, told us it was time to shut down, and there were many hugs and greetings and reluctant goodbyes.

One boy lingered. I gratefully accepted his offer to take down decorations and help me carry boxes and coolers down to my car. He was a sad case: a really good-lookin, soft-hearted boy who had suffered many years of neglect and abuse by his drug-addicted and alcoholic single mother. He was, in fact, living independently at age fourteen in a converted fire hall apartment with the aid of Child and Family Services. There just wasn't any other family capable of or willing to take him in.

He had so little. I packed up all the leftover food for him, boxed up a little tree I'd had on my desk and decorations, and drove him home. He broke my heart with his gratitude. He clung to me, kissed my hands, and said that I had just given him Christmas and he would never forget it. What he didn't understand is that he had given me Christmas, too.

It's twenty years later and I haven't forgotten, either. That boy taught me more about the true meaning of Christmas than any religious teaching could.

And that's sayin a LOT.

Tuesday, December 20, 2005

Just Call Me Annabelle Lecter

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My radiation treatment went much better today. Not only was I able to dope up in time, but the techs had kindly trimmed away as much of the mask as was feasible. It felt far less restrictive, and given how unconscious I was for the rest of the day, I'm gonna try to tough it out without the meds tomorrow. My treatments will be 5 days a week, with a few interruptions for Christmas. I don't really want to be that sleepy and groggy for 16 days, much less through the holidays. Can you see me doin a face plant in my turkey and mashed potatoes on the 25th?

I will definitely lose a big chunk of hair on the left side of my head. That half-shaven style went out with Cyndi Lauper, I'm afraid, so I might be checkin out the free wig loans at CancerCare.

I had already planned to avail myself of the volunteer drivers to get me to my treatments if I needed the anti-anxiety drugs and they made me too groggy to drive. Next week Curtis will be on holidays and will be able to take me, and by then I hope to be so accustomed to the mask that I won't need the meds or a chauffeur.

I can do this.

Monday, December 19, 2005

Purely Awful

I didn't have radiation today; that will start in the next couple of days or so. I was pinned down in that horrible tight-fitting plastic mask for about 20 minutes while measurements and pictures were taken, and markings made. The entire time I felt myself teetering on the edge of hysteria, but I managed to keep perfectly still; I just didn't want it to last longer than necessary. Afterwards, I had a complete meltdown - what you would call a panic attack, I guess. I had to calm myself with some tea in the patient resource centre before I dared get behind the wheel. A very kind volunteer soothed me and gave me a book on self-healing to peruse at home. I'm gonna hafta ask the technicians if they can cut away part of the mask without compromising the radiation treatments, because I'm sure I can't take sixteen more ordeals like today's. The mere thought of it puts me on the verge of tears. There's a good chance I'll lose some hair, depending on the direction of the beam; I'll find out when I meet the radiologist later this week.

I'm praying for strength.

Update: My oncologist, bless his heart, is calling a prescription over to the clinic pharmacy this evening for an anti-anxiety drug for me. I can pick it up before my first radiation treatment, which I found out is at 9:45 am tomorrow. That way, even if the techs can't trim the mask away, I'll have something to calm me. The people at CancerCare Manitoba are wonderful, from the volunteers right on up to the doctors; they really strive to help patients through the cancer journey as best they can. I'm very grateful.

Friday, December 16, 2005

I'm the Filling in a Love Sandwich

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I am a prodigious list-maker. I love to make to-do lists. I love to scratch things off a list as I complete them. I confess to having added things to the list after the fact, for the mere pleasure of scratching them off and admiring the tangible evidence of my accomplishments. But then of course it looks messy, and my OCD personality compels me to make a new, neater list. It's a sickness, I know.

When I was teaching, there were always a million things to be done, and since I have a poor short-term memory, I used my organizational skills to keep me on track. I loved to have two folders on my desk, one labelled in big letters with a sticky note that read "TO DO," and the other "TA-DA!"

This morning at 3 am, I lay in bed making mental lists of things that I need to do, buy, and take over to a friend's for a tree-decorating party tonight. Experience told me that if I didn't get up and write things down, I would toss and turn with a buzzing head for the rest of the night. And so I arose and made tidy lists, thus calming myself and opening the possibility of a bit more rest.

When I got back to bed, I lay on my right side. Curtis snuggled up against me, Milo burrowed under the covers and curled up on the other side, and Monkey climbed on top and started her motor. There isn't anything more comforting than:
- a snoring hillbilly spooned against your back
- a tabby cuddled up to your tummy, and
- a persian purrin on your hip.

That's the best list of all.

Wednesday, December 14, 2005

Minty Poo

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My white knight

A chat friend laughed on Monday when I described the strong essence in our house as first poo, then minty poo, then minty/chocolatey/datey/poo (aromas from my Christmas baking comingling with the scent of Roto-Rooter's organic drain cleaner and the stench of sewage).

Yup, we were having plumbing problems, everyone's nightmare. Thankfully, things turned out much less serious than originally feared, and we will not have to have the cement basement floor jack-hammered at huge expense. Nor do I have to lose sleep over the potential of sewer back-up in our festively decorated rec room.

Whew.

After two consecutive days of a Roto-Rooter vehicle standing in our driveway, I'm sure the neighbours think we have a cocker-spaniel sized rat clogging our sewer, but all is well again.

The air has been cleared, in more ways than one.

Sunday, December 11, 2005

Christmas Spirit

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If you can't seem to get into the spirit of the Christmas season, if you're one of those people who think that Christmas has become nothing but commercialized and exploited by profit-mongers, if you have come to believe that no one remembers the true reason for the season, take my advice and find a carol service at a small church. In addition to attending regular church service today, Curtis and I returned to our little church in the country to participate in a potluck dinner (delicious, and I managed to snag some new recipes as an added bonus) and a carol service afterwards. During the service, we listened to the story of the Nativity as told by Father Robin in his mellifluous voice with its wonderful cadence. We sang many beautiful traditional carols that illustrated the Bible passages that we heard, and my heart swelled to bursting. No, we don't have a gorgeous pipe organ or a spectacular choir like we did at the big church we used to attend in the heart of the city; but what we do have are a small congregation of gentle souls and good hearts. And we like to sing!

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By the way, Robin and his family were pleased with the gift of the cross-stitch, and said it looks great sitting atop their piano. Makes me proud to know it's been given such a nice new home.

If you have an extra prayer or positive thought in your pocket, I'd appreciate it if you could send it the way of our church friend Margot, who has lost her speech again after several seizures. It is our fervent hope that radiation to her brain will stave off the cancer that has spread there from her lungs. She's a wonderful lady who has unselfishly given many hours of dedicated work as former church secretary, a job she has recently been forced to relinquish due to her illness.

Friday, December 09, 2005

Am I in Calgary, Auntie Em?

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Thanks for sharing your chinook, Leslie

We are having some weird weather: Right now it's snowin like crazy, but the streets are pure slop. Temperatures have gone way up from the deep freeze we were in (thankfully), and city streets are a mess. My poor lil PT Cruiser looks like a mudball; I may have to get it fitted with some bobskates if the temps drop again.

Lunch was yummy. I realized something very telling when I looked at the fuel gauge in my car on the way to the restaurant: The last time I filled my car with gasoline was a month ago, and I still have more than half a tank left. Shows you I don't get out much during the week. I guess that will change once radiation starts up again. I should get the first part of my treatment schedule some time next week.

Thursday, December 08, 2005

Thai-ing One On

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Mmmmmmm Thai food! Tomorrow my sister-in-law and I will meet at Sawatdee Thai restaurant for their wonderful lunch buffet. Diane and I normally treat each other to dinner for our birthdays, but with busy pre-Christmas schedules, we decided that a lunchtime meeting would work out better. Too bad Curtis can't join us, because it's one of his favourites.

I am trying to get through my Christmas baking to-do list, but some days I don't feel up to it, and others I end up waylaid by other projects....Curtis loves to find new recipes online, and his most recent one was for a black walnut cake. You can't get the nuts up here, so he ordered some on eBay. This morning I went to the store to get some ingredients, and spent the better part of the morning whippin up the cake for him. I also ended up making a 7-up Christmas salad (a jellied concoction) for a church potluck. So I got only one slice made (pink lady, so named for its colourful icing). Tomorrow I will have time only for a quick vacuum before I drive across town to stuff my guts with Thai cuisine.

Tuesday, December 06, 2005

Projects Completed

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Today I completed the two above cross-stitches, which are 16 X 20 in their mats and frames. I will be giving them as Christmas gifts to two very special people in our lives, the first one to a friend of the family who is very good to my mom (and whom a little birdie told me contributed to our whale-watching fund), and the second to the rector of our church. I want them to know how much we appreciate all they have done for us, and to have a remembrance of me.

I should now be able to focus on my Christmas baking, and then hopefully on some paper embossing (I want to make my own gift tags).

Monday, December 05, 2005

Odds n Ends

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Curtis was miserable with some sort of flu bug yesterday, although he did go into work today. I'm fighting something, too, as evidenced by a weird cold sore eruption on my CHIN, of all places.

I'm cross-stitching my face off, tryin to finish a piece for a Christmas gift. I'll get it done in time for sure, but I still have lots of baking to do, and I haven't felt like it lately (unusual for me).

I've also been busy contacting people (with Kathy's generous help) to try to get my mittens on that trial drug, even earlier than mid-January. I've been on the phone with someone from the drug company, and she said I'm definitely eligible for several trials that are currently recruiting. I've left voice mail with a representative at the nearest trial site (Edmonton, Alberta), and am anxious to hear if I can travel there and start the drug any sooner than if I wait for it come here in mid-January. Maybe not with the holidays, but you never know unless you try, right?

Speaking of Kathy, hop on over to her page and check out the wonderful account and photos of her family's Make a Wish polar bear expedition up north - fascinating stuff! Even better, give Steven a big "atta boy" for the good results from his MRI at MDA in Memphis.

Update: I spoke with the drug trial representative in Edmonton, and starting the trial there would not be feasible. First of all, they can't see me until January, so I'd be gettin a headstart of only a couple of weeks, anyway. Secondly, the drug company will not allow me to transfer my trial from Edmonton to my home city of Winnipeg once it becomes available here. Since scans, tests and consultations are required after every cycle (you cycle on the drug for 4 weeks, then off for 2), I'd have to constantly travel; and that would be far too taxing for me physically, given the rigours of the drug's side effects. It seems best that I just wait. Truthfully, I would rather spend the Christmas season feeling relatively well, then prepare for the sickness that comes with treatments in the New Year.

Oh well; at least I tried. Thanks, Kathy, for all your help and support.